Not Just Patients
Hello and welcome to Not Just Patients, a podcast where we break barriers to meaningful patient involvement in healthcare.
We’re your hosts, Caitlin Rich and Clarinda Cerejo. We’re both rare disease patients and qualified patient experts. And we are so much more.
Join us and our guests as we challenge patient stereotypes, highlight successful collaborations in healthcare, and share energizing tales of turning adversity into advocacy.
Episodes
12 episodes
Bolstering Rare Disease Research through Collaboration┃Jo Balfour
Join us for this special Rare Disease Day episode of Not Just Patients, where we speak with Jo Balfour, Managing Director and Co-founder of Ca...
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Episode 12
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59:43
Designing Patient-Aligned Clinical Trials┃Maya Zlatanova
Join us for an insightful conversation with Maya Zlatanova, CEO and Co-founder of FindMeCure and TrialHub, as we discuss patient-aligned clinical trials that consider both scientific rigo...
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Episode 11
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59:55
Not Just Patients LIVE | Danielle Drachmann and Sumaira Ahmed
Join us for this special (unedited) recording of Not Just Patients, which was streamed LIVE on LinkedIn!To celebrate our 10th episode, we were joined by two incredibly inspiring advocates,
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Episode 10
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1:24:29
Advancing Equity, Diversity, and Inclusion in Healthcare┃Prof. Lara Bloom
Join us for a compelling conversation with Professor Lara Bloom, President and CEO of the Ehlers-Danlos Society. A strong patient advocate, Lara has a passion for pushing boundaries and fight...
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Episode 9
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59:49
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Demystifying regulatory affairs and HTA┃Anke-Peggy Holtorf
On this episode, Dr. Anke-Peggy Holtorf joins us to help demystify the complex processes of regulatory affairs and health technology assessment (HTA) and explain the crucial role of ...
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Episode 8
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1:01:48
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Navigating Digital Health and Health Data┃Mark Duman
On this episode, we speak to Mark Duman, Chief Patient Officer at MD Healthcare, about digital health and health data, how digital therapeutics get developed and approved, and how challenges aro...
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Episode 7
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1:00:38
Medical Publications: From Access to Patient Authorship┃Avishek Pal
On this episode, we speak to Avishek Pal about how patients can better access and contribute to medical publications.In parallel to his day job as Global Medical Director o...
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Episode 6
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1:00:48
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Embracing Shared Decision-Making in Patient Care┃Dr. Victor Montori
In this episode, we speak to Dr. Victor Montori about the importance of shared decision-making in healthcare. Dr. Montori is the Robert H. and Susan M. Rewoldt Professor...
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Episode 5
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1:00:01
Embedding Patient Perspectives into Clinical Research┃Robert Joyce
On this episode, we talk to Robert Joyce about the critical role of patient involvement in clinical research and the various ways in which patients can bring rich perspectives to the rese...
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Episode 4
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59:00
Mobilising Meaningful Pharma-Patient Collaboration┃Bronwyn Lewis
On this episode, we speak with Bronwyn Lewis, Global Head of Patient Engagement at Boehringer Ingelheim. Drawing on her 20+ years of experience across diverse r...
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Episode 3
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1:01:38
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