Not Just Patients
Hello and welcome to Not Just Patients, a podcast where we break barriers to meaningful patient involvement in healthcare.
We’re your hosts, Caitlin Rich and Clarinda Cerejo. We’re both rare disease patients and qualified patient experts. And we are so much more.
Join us and our guests as we challenge patient stereotypes, highlight successful collaborations in healthcare, and share energizing tales of turning adversity into advocacy.
Not Just Patients
Equipping Patients for Shared Decision-Making | Estelle Jobson
Join us for an empowering conversation with Estelle Jobson, EUPATI Fellow and patient expert living with endometriosis, about equipping patients for shared decision-making.
Estelle is a founding patient partner at Geneva University Hospitals (HUG) programme, PartnerREC, and a seasoned communications professional with an MSc in Publishing from NYU. With decades of experience supporting patient-centric research and serving as a patient reviewer for the British Medical Journal, Estelle brings a unique perspective on navigating the healthcare system and empowering patients to take charge of their medical journeys.
In this episode, we dive deep into the concept of shared decision-making—what it really means for patients and providers, why it is so rare, and how it can transform healthcare outcomes. Estelle shares her personal story, highlights the barriers patients face, and introduces practical tools to help patients get the most out of their medical consultations.
Chapters:
00:00:00 - Introductions
00:01:27 - Defining shared decision-making
00:08:35 - Estelle's story and motivations
00:15:47 - Importance of patient choice
00:20:21 - Barriers to shared decision-making
00:27:03 - Tools that aid shared decision-making
00:42:56 - A collaborative approach to lifestyle changes
00:46:55 - Estelle's dream for patient care
00:51:35 - Estelle's advice for patients and stakeholders
00:55:24 - Reflections with Caitlin and Clarinda
Resources and abbreviations:
- SBAR (Situation-Background-Assessment-Recommendation)
- TeamSTEPPS (Team Strategies & Tools to Enhance Performance and Patient Safety)
- Ready Steady Go Programme
- Ask Me 3
- Not Just Patients episode with Dr. Victor Montori: Embracing Shared Decision-Making in Patient Care
Have feedback or suggestions for us? We'd love to hear from you!
Website: notjustpatients.com
LinkedIn: Not Just Patients
Email: info@notjustpatients.com
