Not Just Patients
Hello and welcome to Not Just Patients, a podcast where we break barriers to meaningful patient involvement in healthcare.
We’re your hosts, Caitlin Rich and Clarinda Cerejo. We’re both rare disease patients and qualified patient experts. And we are so much more.
Join us and our guests as we challenge patient stereotypes, highlight successful collaborations in healthcare, and share energizing tales of turning adversity into advocacy.
Have feedback or suggestions for us? We'd love to hear from you! Email us at info@notjustpatients.com or find us on LinkedIn.
Episodes
26 episodes
Empowering Patients through Access to Medical Records | Richard Fitton
Join us for an enlightening conversation with Dr Richard Fitton, retired GP and long-time champion of patient access to electronic medical records, as we explore what it really means to share data, power, and responsibility with patients.
Developing Patient-Centred Outcomes Measures | Jennifer Bright
Join us for an enlightening conversation with Jennifer Bright, President and CEO of the International Consortium for Health Outcomes Measurement (ICHO...
Advancing Rare Disease Care through Patient Advocacy | Emily Reuben OBE
Join us for this special Rare Disease Day episode with Emily Reubin OBE, Co‑founder and CEO of
Galvanising Multistakeholder Collaboration for Meaningful Change | Derick Mitchell
Join us for an inspiring conversation with Derick Mitchell, Executive Director of
Reflections on 2025, Hopes for 2026 | The Community Speaks
What was one key learning around patient engagement that you're taking away from 2025? What gave you hope in patient engagement and advocacy this year? What’s one thing you’d love to see in patient engagement next year?<...
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Co-Creating HealthTech Solutions | Cécile Tardy-Srinivasan
Join us for an insightful conversation with Cécile Tardy-Srinivasan, EUPATI Fellow, patient advocate, and leader of the DayOne Accelerator, as we explore what it takes to bring meaningful p...
LIVE: National PPI Festival Launch at the Royal College of Surgeons in Ireland
Love to listen or prefer to watch? For the first time, the video recording of this episode is available on our YouTube channel: https://www.youtube.com/watch?v=ansbXaF9B6cJoin us for the first in-person recorded episode of Not Just Patie...
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Raising Public Awareness through Multi-Channel Advocacy | Trishna Bharadia
Patient advocate and engagement consultant Trishna Bharadia joins Caitlin and Clarinda to explore how advocacy can be supercharged by tapping into diverse channels, from niche community...
Building Empathy by Understanding Patient Experience | Mark Doyle
Join us for a thought-provoking conversation with Mark Doyle, as we explore the vital role of empathy in healthcare and how truly understanding the patient experience can drive bette...
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Equipping Patients for Shared Decision-Making | Estelle Jobson
Join us for an empowering conversation with Estelle Jobson, EUPATI Fellow and patient expert living with endometriosis, about equipping patients for shared decision-making.<...
Shaping Health Policy with Patient Input | Urvashi Prasad
Join us for this inspiring conversation with Urvashi Prasad as we discuss how patients can be involved in shaping healthcare policy. Urvashi was a Director in the Office ...
Professionalising Patient Engagement┃Emma Sutcliffe
This episode of Not Just Patients is all about the need for viewing patient engagement as a professional practice integral to healthcare, rather than just passion work.Our expert guest today is
A Year in Review┃LIVE TAKEOVER with Joel Nelson
In celebration of our First Anniversary at Not Just Patients, we hosted a very special LinkedIn LIVE Podcast Takeover with Guest Host
Balancing Professional Life and Chronic Illness┃Lilly Stairs
On this episode, we talk to Lilly Stairs about thriving in your career and managing your health while living with a chronic illness.Lilly Stairs is an internationally recognized pati...
Bolstering Rare Disease Research through Collaboration┃Jo Balfour
Join us for this special Rare Disease Day episode of Not Just Patients, where we speak with Jo Balfour, Managing Director and Co-founder of Ca...
Designing Patient-Aligned Clinical Trials┃Maya Zlatanova
Join us for an insightful conversation with Maya Zlatanova, CEO and Co-founder of FindMeCure and TrialHub, as we discuss patient-aligned clinical trials that consider both scientific rigo...
[LIVE] The Advocacy Life | Danielle Drachmann and Sumaira Ahmed
Join us for this special (unedited) recording of Not Just Patients, which was streamed LIVE on LinkedIn!To celebrate our 10th episode, we were joined by two incredibly inspiring advocates,
Advancing Equity, Diversity, and Inclusion in Healthcare┃Prof. Lara Bloom
Join us for a compelling conversation with Professor Lara Bloom, President and CEO of the Ehlers-Danlos Society. A strong patient advocate, Lara has a passion for pushing boundaries and fight...
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Demystifying Regulatory Affairs and HTA┃Anke-Peggy Holtorf
On this episode, Dr. Anke-Peggy Holtorf joins us to help demystify the complex processes of regulatory affairs and health technology assessment (HTA) and explain the crucial role of ...
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Navigating Digital Health and Health Data┃Mark Duman
On this episode, we speak to Mark Duman, Chief Patient Officer at MD Healthcare, about digital health and health data, how digital therapeutics get developed and approved, and how challenges aro...
Medical Publications: From Access to Patient Authorship┃Avishek Pal
On this episode, we speak to Avishek Pal about how patients can better access and contribute to medical publications.In parallel to his day job as Global Medical Director o...
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Embracing Shared Decision-Making in Patient Care┃Dr. Victor Montori
In this episode, we speak to Dr. Victor Montori about the importance of shared decision-making in healthcare. Dr. Montori is the Robert H. and Susan M. Rewoldt Professor...
Embedding Patient Perspectives into Clinical Research┃Robert Joyce
On this episode, we talk to Robert Joyce about the critical role of patient involvement in clinical research and the various ways in which patients can bring rich perspectives to the rese...
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