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Not Just Patients
Hi! We’re Caitlin Rich and Clarinda Cerejo, Co-Hosts of Not Just Patients, a global podcast that aims to bring stakeholders together and break barriers to meaningful patient involvement in healthcare.
We both live with rare diseases, are EUPATI Fellows, and work in healthcare research and communications. Over the past two and a half years, we have hosted in-depth conversations with a range of healthcare stakeholders to examine how healthcare can become more inclusive, collaborative, and effective.
We were recently interviewed by the World Medical Journal, won the Acquisition International Non-Profit Organisation Award for Excellence in Driving Patient Engagement 2025, and were named Patient Advocacy Podcast of the Year in the Corporate LiveWire Awards 2025/2026.
Our guests are patient advocates, healthcare professionals, industry representatives, and other stakeholders who interact with the health system at large. Each of our guests brings in a unique perspective on patient engagement and shares stories of initiatives they’ve championed or been involved in.
We will soon be launching a special series on Underserved Communities in Healthcare. The series will explore what meaningful patient involvement looks like for communities that healthcare systems too often fail to adequately see, hear, or design for. This includes children and young patients, disabled and neurodivergent people, LGBTQIA+ communities, racial and ethnic minorities, and people from lower- to middle-income countries.
Have feedback or suggestions for us? We'd love to hear from you! Email us at info@notjustpatients.com or find us on LinkedIn.
Not Just Patients
Ensuring Patient Safety in Clinical Trials and Medical Practice | Stacy Hurt
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Join us for a powerful conversation with Stacy Hurt as we dive into what patient safety really means in clinical trials and everyday medical practice.
Stacy is Chief Patient Officer at Parexel, where she leads efforts to embed the patient voice across clinical research and drug development. A patient, survivor, and caregiver herself, Stacy brings both professional expertise and lived experience to her work—advocating for more inclusive, patient‑centred trials and meaningful engagement throughout the research journey. She is a widely respected leader and speaker dedicated to improving how research is designed, conducted, and experienced by patients worldwide.
In this episode, Stacy draws on both her professional expertise and deeply personal experiences as a patient and caregiver to help us unpack patient safety: what it is; why it’s so poorly understood; and how fear, blame, and broken feedback loops stop patients and clinicians from reporting what’s really happening.
Note: The example Clarinda shared about a patient on psychiatric medication was inspired by a LinkedIn post from a Patient Safety Expert
Chapters:
- 0:00 - Introductions and episode overview
- 1:07 - Stacy’s story - diagnostic and surgical errors
- 5:26 - Defining patient safety and adverse events
- 11:38 - Barriers to reporting adverse events
- 14:15 - Patient safety in the drug development process
- 17:11 - Patient involvement to improve trial safety
- 20:40 - Patient safety monitoring in medical practice
- 25:57 - Adverse event reporting by pharmaceutical companies
- 29:28 - Collaborating to improve patient safety
- 33:19 - Informed consent and patient education materials
- 36:59 - Empowering patients to report symptoms and side effects
- 42:36 - A call to action
- 49:19 - Stacy's long-term dream for patient safety
- 52:41 - Reflections with Caitlin and Clarinda
Resources and abbreviations:
- SIDM - Society to Improve Diagnosis in Medicine (no longer functional)
- 21st Century Cures Act
- AMA – American Medical Association
- ICU - Intensive Care Unit
- GLP‑1 - Glucagon‑Like Peptide‑1 (therapies often used for weight loss)
- CRO - Contract Research Organisation
- APAC - Asia‑Pacific region
- HTA - Health Technology Assessment
- PROMS - Patient‑Reported Outcome Measures
- PREMS - Patient‑Reported Experience Measures
- HCPs - Healthcare professionals
- EUPATI - European Patients Academy on Therapeutic Innovation
- Tufts Clinical and Translational Science Institute
- Scripps Research Digital Trials Center
- MHRA - Medicines and Healthcare products Regulatory Agency
- MHRA Yellow Card Scheme
Let us know what you thought of this episode
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Website: notjustpatients.com
LinkedIn: Not Just Patients
Instagram: @notjustpatients
Substack: https://notjustpatients.substack.com/
Have feedback or suggestions? We'd love to hear from you.
Email: info@notjustpatients.com
