Not Just Patients
Hello and welcome to Not Just Patients, a podcast where we break barriers to meaningful patient involvement in healthcare.
We’re your hosts, Caitlin Rich and Clarinda Cerejo. We’re both rare disease patients and qualified patient experts. And we are so much more.
Join us and our guests as we challenge patient stereotypes, highlight successful collaborations in healthcare, and share energizing tales of turning adversity into advocacy.
Not Just Patients
Professionalising Patient Engagement┃Emma Sutcliffe
This episode of Not Just Patients is all about the need for viewing patient engagement as a professional practice integral to healthcare, rather than just passion work.
Our expert guest today is Emma Sutcliffe, Chief Patient Officer at the International Society for Patient Engagement Professionals (ISPEP). Emma is one of the most cited and published experts in the field of patient engagement and patient sciences, with her most recent industry role as the Global Patient Officer at Ipsen. In 2024, Emma founded ISPEP -- the International Society for Patient Engagement Professionals -- which became the biggest organisation to align and elevate patient engagement practices in the sector. Her scientific pedigree is as a Medical Biochemist and she recently added to her clinical skill set by qualifying as a psychotherapist and counsellor. Emma also holds several board trustee positions with rare disease patient organisations.
Join us as we explore what it means to be a patient engagement professional (PEP), the movement towards professionalising patient engagement, career development for PEPs, and the power of professional communities.
Chapters
00:00:00 - Introductions
00:01:25 - Emma's journey into patient engagement
00:05:22 - Defining patient engagement
00:08:40 - Role of a Chief Patient Officer
00:12:45 - Careers in patient engagement
00:16:25 - The movement towards professionalising patient engagement
00:23:17 - The debate about lived experience
00:31:44 - Qualities of a patient engagement professional (PEP)
00:37:45 - Challenges PEPs face
00:41:55 - Training and career development
00:45:20 - Advice for patient advocates
00:49:50 - Reflections with Caitlin and Clarinda
Resources and abbreviations
- ISPEP – International Society for Patient Engagement Professionals
- ELT – Executive leadership team
- CPO – Chief Patient Officer
- SOP – standard operating procedure
- FMV – fair market value
- KCL – King's College London
- PFMD – Patient Focused Medicines Development
- EUPATI - European Patients' Academy on Therapeutic Innovation
- PEP - patient engagement professional
- PEP Talks series by ISPEP
Have feedback or suggestions for us? We'd love to hear from you!
Website: notjustpatients.com
LinkedIn: Not Just Patients
Email: info@notjustpatients.com
