Not Just Patients
Hello and welcome to Not Just Patients, a podcast where we break barriers to meaningful patient involvement in healthcare.
We’re your hosts, Caitlin Rich and Clarinda Cerejo. We’re both rare disease patients and qualified patient experts. And we are so much more.
Join us and our guests as we challenge patient stereotypes, highlight successful collaborations in healthcare, and share energizing tales of turning adversity into advocacy.
Not Just Patients
Navigating Digital Health and Health Data┃Mark Duman
On this episode, we speak to Mark Duman, Chief Patient Officer at MD Healthcare, about digital health and health data, how digital therapeutics get developed and approved, and how challenges around access and equity can be navigated.
Mark is a clinician, management consultant, and patient advocate who works with several healthcare organisations to harness digital health, improve market access, and embed patient engagement in healthcare products and services.
Join us for this insightful conversation on a hot and rapidly evolving topic.
Chapters
0:00 - Introductions
1:47 - Mark's story
3:46 - Scope of digital health and health data
6:11 - Enhancing patient care
12:15 - Patient engagement
14:44 - Regulations and reimbursement
21:59 - Challenges around access and equity
28:55 - Development process and patient inclusion
37:35 - Data privacy and ethics
47:18 - Future of digital health
52:57 - Advice for patients/stakeholders
56:39 - Reflections with Caitlin and Clarinda
Resources/abbreviations
- Cerner system for electronic health records
- QALY – quality-adjusted life years
- WALY – wellbeing-adjusted life years
- Salford Lung Study
- PREMS – patient-reported experience measures
- PROMS – patient-reported outcomes measures
- ABPI - Association of the British Pharmaceutical Industry
- ABHI - Association of British HealthTech Industries
- EUPATI Patient Engagement Roadmap
- DTA - Digital Therapeutics Alliance
- DIME – Digital Medicine Society
- NICE – National Institute for Health and Care Excellence, UK
- Sleepio
- Nesta report
- CE Mark
- DTAC – Digital Technology Assessment Criteria
- DTS (data security and protection) toolkit
- Scotland’s Patient Experience Programme
- Flatiron Health Patient Voices Panel
- GDPR - General Data Protection Regulation
- Information Governance Toolkits
- HMO - health maintenance organization
- ZOE Study
- Lloyd’s Bank Consumer Digital Index
- Patient Innovation
Have feedback or suggestions for us? We'd love to hear from you!
Website: notjustpatients.com
LinkedIn: Not Just Patients
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